Day 4 & 5

Yesterday wasn't a bad day at all.


Steve my mums bf came up as its his birthday today, Happy birthday Steve!


We went to Medowhall, i wasn't to impressed. The layouts beyond complicated, & it just feels really close, theres no space.


They have some great shops though, the primark & H&M are amazing, there's actually space, & there isn't clothes thrown all over the floor.


I got some lovely stuff!


We went to TGI Fridays, the food there is sooooooooooo good. I fell in love with blue cheese dip when i was in America, so to have that was amazing!!


I have a slight obsession with American food, i always get lucky charms for my birthday or xmas. If i lived in the US id weigh 40stone, easy.


Today has been so unbelievably boring.


Nothing has happened.


Home tomorrow :D

Day 3: take 2

Bordem has well and truly taken over today!


This day has lasted forever!!!


To say they where so quick to put me in isolation they haven't yet given me any of my lotions and positions.


My mum has gone a bit crazy & took a lot of pictures of herself, I think we are getting cabin fever.


Here's my feet y'day after my surgery, bright pink.

I also got some lovely flowers from my auntie Clare

I need to get outta here!!!

Day 3: Isolation

Last night was unbearable it was so god damn hot! I got hardly any sleep, and once i finally got to sleep they turned the lights on & woke me up every 15 min, wasn't to impressed.


The Doc's came around this morning and said i should be able to go home on Monday..yay!


But i must of jinxed myself because later in the day i was informed i have MRSA. I have had it before so I'm not bother, I'm just hoping & praying i can still leave on Monday, cuz the way the nurse was talking I'd be here at least 7 days.


On the upside i now have my own room, but if i need someone i may be screwed, as i don't think anyone will hear me.

Day 2: Op Done

Afternoon folks...


Its about half 1 & I'm about a hour and a half out of surgery


I feel fantastic, surprisingly.  Instead of going under general anaesthetic i was just sedated. I thought id panic, but i had something to calm me down & i was just chilled.


I don't know what the have done, I'll find out tomorrow what the crack is.


Meanwhile i have a very strange person in the next bay to entertain me. She keeps refusing everything, then she comes out with random stuff that is just random.


I panicked when i heard her voice y'day.


She was here when i first came and she had a very odd bf that just freaked me out. All he went on about was money & he'd rob the patients food.


As soon as i heard her voice i said if that guys about I'm not staying here.


Anyways....... films & food today, hopefully home soon

Day 1: on Osborne 2

My Day started at 5:47am, after around 2hrs sleep my body decided I'd had enough sleep and woke me up, but i had to be up at 6am so i wasn't overly fussed. I knew i wouldn't sleep because i was over thinking everything.


After a very rubbish journey to sheffer's due to being in my chair with having no food or no sleep, we arrived.


We were greeted by a confused looking Doctor asking why we were here, i put my head in my lap and thought 'oh no we weren't supposed to be here' but thank fully he soon remembered.


So here i am, in bed atm waiting for a stewed cup of tea with full fat milk mmm yummie :/ ... not.


Its been an ok'ish day, not had to much time to be bored.


Today went as followed:


10:30am about 7 doc's came to see me, 5 being students, but this is a teaching hospital.


11am signed paperwork then napped.


1pm a doc came to put a arrow on the leg with the poorly foot. You'd think after 5yrs at uni they would know their left & right.


1:30pm first Doc spent 40min trying to take blood. He asked a student doc for help, she ended up just watching & asking questions, which i think annoyed the doc but i thought she was nice.


2:30pm did more paperwork.


3pm 2nd doc spent 20min trying to get blood.


3:45pm down for xrays, and instead of letting me go down in my chair & the xrays taking 5min, i had to get in bed & the xrays took over half an hour.


5pm the doc came back and finally got blood.


6:15pm KFC yum yum, you may remember i don't do hospital food.


Now I'm chilled in bed....


As you may have guessed from my lil dairy of events, my veins don't play nice. They just hide, i was pricked about 7 times, and had purple/blue arms a few times.


So although i haven't done anything fun, it's kept me busy.


Surgery tomorrow at 9ish, wish me luck

Hospital tomorrow

Hospital tomorrow ='[


At 11:30am it was a no, as there was absolutely no room.


2:30pm the want me in today. But i know they only do surgery Tuesdays & Thursdays, so theres no point me spending a pointless night in hospital. So i have to get up at 6am to be at the hospital for 10am rounds, but theres no guarantee i will be staying or getting surgery.


So i'll blog with more info as soon as im home or can get online

No longer going on my hols...for now

Was a early start today the Physio was supposed to come, but 30min before she was supposed to arrive shes phoned & canceled, this now being the 3rd canceled appointment. The first time she turned up but didn't come in, she just left a note, strange i know. The 2nd time i canceled because i had a hospital appointment. Now shes "ill"


After that we got another phone call from the hospital.


Theres been some emergencies so theres no bed for me. Which is fair enough, but it is very annoying.


As the hospitals 2hrs away my mum has to take time off work. Then because PCT dont fund PA's when im in hospital they have to come & go, but because we dont know we cant tell the company. I can see us ending up having no PA at some point, or having just a random new PA cuz they have sent my regular PA somewhere else, which will just stress me out. Its not easy to just take a week or 2 out with out any notice.


Plus i cant keep messing college about, plus most importantly it's my birthday party on the 5th and i am not!!! canceling it!!


So if im not going in next week im not going in till after my birthday.


I dont know wheather to just get it done here, because it will be done sooner and i'll be out sooner. But at Sheffield there going to cut tendons in both feet to help with spasems & foot postion, which is a massive bounes, but im just bored and annoyed with waiting now. This has been going on since May.


I just want to wear shoeeees...

Im going on holiday, A week in Hospital

I went to my old stomping ground Sheffield on Monday.


I have to go in next Monday have surgery Tuesday then stay in for up to 10 days, which means i might be in for my birthday *sad face.


My party's on the 5th i WILL be out!!


Im being naughty & quitting my antibiotics, theres no point if there getting chopped up. Then im going to eat chinese & get drunk on Saturday with my friend.


It's half term so at least i wont be missing much college.


The Doc wanted to keep me in for a month or 2, but theres no chance, i would have to drop out, & i have fought sooo hard to keep my place, im not letting this stop me finishing.


So we agreed that i can stay for a short time then i have to go back every week, which will be annoying for mum as its a hour & half to 2hr journey each way. But if we hit traffic it can be up to 4hrs, as we found out on Monday.


So im going to be living off crap for a while, cuz i do not eat hospital food, plus on days when we are traveling, takeaways are so much easier.


If i dont blog for a while its because im on bed rest so i cant get to the computer room.


A week with out facebook, How will i cope ??

Settled in time for my birthday

Well im off to Sheffield on Monday to see the Doc to see what he says. Im hoping he lets us stay local, saying that I'd feel more comfortable there cuz i know everyone. Iv got it in my head it will be done quicker if i stay local, don't know why. Im taking an over night bag though just in case.


We have got our film sorted-ish to & im happy with the concept. Its way to hard to explain, but once its all done & its been marked i'll post it.


Im glad everything with college is sorted now. It has been stressful but i defiantly feel settled now. Im confident now that i will do well. Im thank full that i did have my mum, tuters and friends fighting my corner, because without their support i don't think i would be in college right now, so thank you everyone :)


Anyways... Its my birthday soon, i'll be 20! No longer a teenager =[


Im excited though, im having friends & family at the house for food and drinks , and im also having a secret auction. I was going to have a like a body shop or virgin vie party, but it can be a bit annoying and awkward being talked at for a few hours so i decided i would host my own. That way i can keep all the profit and put it towards adapting my chair.


Yesterday me mum & liz my PA went shopping for auction items, it was lots of fun actually & we got some great stuff! We got some jewelry, A gurjus photo frame, bags, some lovely pillows, a bedspread, a teapot and loads more...


I can't wait now...


After all our shopping we had afternoon tea which was actually amazing!! Egg, poached salmon, chicken & bacon, & like a creamy Stilton sandwich's. Then scones jam & cream, carrot cake, strawberry & cream tarts, & a chocolate & orange tart. It was soooooo good!! was under £20 for 3 of us! Defiantly recommended. Boundry mill, Colne its a must!


All this food talks making me hungry


Tea time :)

Lots of waiting

So not had any news yet about my feet just yet, except a nurse from the spinal unit i was at is coming  to give their verdict.


Not much has been going on really, i have been zombiefied. I can't sleep yet im tired all the time! I think its anxiety mainly because we have a new PA. She is lovely & can do her job, but im always on pins with new PA's just because we have had so many bad experiences. So hopefully next week once every things settled i should be ok.


Got a bit more of good news from college. My tuter is letting me & zainab re-do our film on our own. So the stress of that will be going down by a hell of alot!! I wont have to relay on unreliable people.


But im abit uneasy about the subject. Showing how i as a disabled person can be isolated by society, and how zaniab is isolated as a Muslim. Im very interested in exploring it, just very nervous as its a bit close to the bone. I wont be doing it if im not comfortable, which my tuter understands, so we shall see.


Lots of waiting now...

Bye Bye Tootsie

I went to the hospital Wednesday as i do every other Wednesday for my feet. It wasn't good news! The nurse wasn't very happy with what she saw, i had to go back on Thursday to see the doc, he wasn't to happy either.


On my left foot the tendon is on show,  then the infection in my toes on my right foot has flared up.


The Doc was going to clean it out, but suggested using gas & air, i said that's probably best cuz if i go AD (autonomic dysreflexia)* we will have problems. He seemed a tad concerned.


So he suggested i go under, then while im asleep they can clean it out, get rid of dead tendon, then they'll take my right toe off, then they will check out my other sores to see if they need cleaning.


Im not sad its only a toe or two, id rather this than it flare up every few months.


I got sent for x-rays, & put on antibiotics indefinitely. Now i have to wait till i get a date for surgery.


Ill keep you posted...

*http://www.sci-info-pages.com/ad.html

Ill is a understatement!!

I have felt off for awhile now, and my test results confirmed i have an infection, so iv got some antibiotis for that, which are just making me feel sick.


But on Thursday oh my it hit me like a brick wall.


I had just arrived at college and the fire alarm went off which knocked out the lifts meaning i couldn't get to class, which turned out to be a blessing.


When i got home i began to get itchy, then burning hot, then freezing cold & majour sweats. I couldn't sit up. I haven' felt that unwell in so long. 


I have spent the whole week just feeling crap!


In class yesturday i was shivering uncontrolably and i could feel my face going blotchy  & i could see everyone staring at me thinking "is she ok?"


Once home i wrapped up in 3 blankets, took paracetamel, iburophen, antisickness & antibiotics, and by 4:30pm i felt ok'ish, ok enough to cook.


I LOVE to cook, its the best physio cuz you dont even realize your doing any exercise.


I made a onion goats chesse and spinich tart & a tomato mozerella and salami one, they were very yum!

Im feeling better today, but i haven't got up yet.


I got a feeling im going to get worse though as my feet are getting worse :(


I hate being poorly, it sucks!!


But 2 of my lovely ladies might be coming tonight as we have some serious gossip to catch up on!!